Managing Side Effects of Multiple Myeloma Treatment

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May, 21 2023

Understanding Multiple Myeloma and Its Treatment

As a person living with multiple myeloma, I know firsthand the difficulties and challenges that come with this type of cancer. Multiple myeloma is a cancer of the plasma cells, which are responsible for producing antibodies that help our body fight off infections. Treatment for multiple myeloma often includes chemotherapy, radiation therapy, stem cell transplantation, and targeted therapy, among others. In this article, I will share my experiences and tips on how to manage the side effects of multiple myeloma treatment.

Managing Fatigue During Treatment

Fatigue is one of the most common side effects of multiple myeloma treatment. It can be both physically and mentally exhausting, making it difficult to perform daily tasks. To manage fatigue, it is essential to prioritize your activities and plan rest periods throughout the day. Break tasks into smaller, more manageable steps and ask for help when needed. Make sure to get enough sleep and maintain a consistent sleep schedule. Incorporating light exercise, such as gentle stretching or walking, can also help improve your energy levels.

Dealing with Nausea and Vomiting

Chemotherapy and other cancer treatments can cause nausea and vomiting. To minimize these side effects, try eating smaller, more frequent meals instead of three large ones. Avoid foods that are high in fat or have strong smells, as they may trigger nausea. Drinking ginger tea or using ginger supplements can help alleviate nausea. Talk to your healthcare team about anti-nausea medications that can be prescribed to help manage this side effect.

Addressing Bone and Joint Pain

Multiple myeloma can cause bone and joint pain, which may be exacerbated by certain treatments. Pain management is crucial for maintaining your quality of life. Over-the-counter pain relievers, such as acetaminophen or ibuprofen, can help with mild to moderate pain. For more severe pain, talk to your healthcare team about prescription pain medications. Physical therapy, acupuncture, or massage may also provide relief from pain. Additionally, maintaining a healthy weight and engaging in low-impact exercise can help support your bones and joints.

Managing Anemia and Other Blood-Related Issues

Multiple myeloma and its treatments can cause anemia, which is a decrease in the number of red blood cells. This can lead to fatigue, shortness of breath, and dizziness. To manage anemia, eat iron-rich foods such as lean meats, beans, and leafy green vegetables. Your healthcare team may also recommend iron supplements or medications to stimulate your body to produce more red blood cells. Regular blood tests will help monitor your blood counts and ensure that any blood-related issues are addressed promptly.

Preventing Infections

Multiple myeloma and its treatments can weaken your immune system, making you more susceptible to infections. To reduce your risk of infection, practice good hygiene by washing your hands frequently and keeping your living environment clean. Avoid contact with people who are sick and make sure to stay up to date with vaccinations. Talk to your healthcare team about medications that can help boost your immune system and prevent infections.

Coping with Digestive Issues

Chemotherapy and other cancer treatments can cause digestive issues such as constipation, diarrhea, and loss of appetite. To manage these side effects, eat a balanced diet rich in fruits, vegetables, and whole grains. Drinking plenty of water and incorporating high-fiber foods into your diet can help prevent constipation. For diarrhea, consider eating low-fiber foods and avoiding caffeine, alcohol, and spicy foods. If digestive issues persist, talk to your healthcare team about medications that can help manage these side effects.

Managing Skin and Hair Changes

Some cancer treatments can cause changes to your skin and hair. To manage these side effects, use gentle, fragrance-free skincare products and avoid hot showers or baths that can further irritate the skin. Apply sunscreen with at least SPF 30 before going outside and wear a hat to protect your scalp from the sun. If you experience hair loss, consider wearing a wig, scarf, or hat to help you feel more comfortable and confident.

Dealing with Emotional and Mental Health Challenges

Living with multiple myeloma and undergoing treatment can take a toll on your emotional and mental health. It is essential to acknowledge your feelings and seek support from friends, family, or support groups. Talking to a therapist or counselor can also help you cope with the emotional challenges of living with cancer. Engaging in relaxation techniques, such as deep breathing exercises, meditation, or yoga, can help reduce stress and improve your overall well-being.

Staying Informed and Communicating with Your Healthcare Team

One of the most important aspects of managing the side effects of multiple myeloma treatment is staying informed and maintaining open communication with your healthcare team. Keep track of your symptoms and side effects and share this information with your doctors and nurses. They can help you develop a personalized plan to manage your side effects and ensure that you receive the best possible care.

In conclusion, managing side effects is a critical part of living with multiple myeloma and undergoing treatment. By staying informed, communicating with your healthcare team, and utilizing various strategies to address specific side effects, you can improve your quality of life and focus on your journey toward healing.

14 Comments
  • ridar aeen
    ridar aeen May 22, 2023 AT 07:24

    Wow, this is honestly one of the most practical guides I’ve read on myeloma side effects. I’ve been through chemo and the fatigue? Brutal. But the part about breaking tasks into tiny steps? Life-changing. I started doing that and suddenly I could shower without needing a nap afterward.

  • Samuel Wood
    Samuel Wood May 22, 2023 AT 22:12

    Ugh. So much of this is just regurgitated Mayo Clinic pamphlets. Anyone who’s actually lived with this knows you need real solutions-not ‘drink ginger tea’ and ‘take a walk.’ Where’s the data? Where’s the peer-reviewed nuance? This reads like a blog written by someone who googled ‘cancer tips’ for 20 minutes.

  • chantall meyer
    chantall meyer May 24, 2023 AT 03:33

    Interesting. I’ve seen this before in SA. The fatigue advice is basic but correct. The bone pain part? Missing bisphosphonates. And no mention of denosumab? That’s a red flag. Also-ginger tea? Cute. But if your nausea is from bortezomib, you need ondansetron. Not herbal nonsense.

  • Lorne Wellington
    Lorne Wellington May 24, 2023 AT 15:38

    Hey, I just want to say thank you for writing this. 🙏 I’m a caregiver for my mom and this is the first time I’ve seen someone actually talk about the emotional toll without sounding like a motivational poster. The part about therapy and yoga? Yeah, that’s real. We’re not just bodies with cancer-we’re people. Keep sharing.

  • Will RD
    Will RD May 26, 2023 AT 15:16

    So you just say eat iron? Bro. Anemia isn’t fixed by spinach. You need IV iron if your gut’s fried from chemo. This whole thing is dangerously oversimplified. People die from this stuff.

  • Jacqueline Anwar
    Jacqueline Anwar May 27, 2023 AT 15:52

    While the tone of this article is undeniably well-intentioned, it lacks the rigor expected of medical discourse. The conflation of anecdotal experience with clinical guidance risks misleading vulnerable populations. One cannot manage myeloma with ginger tea and mindfulness alone. The absence of pharmacological nuance is concerning.

  • Ganesh Kamble
    Ganesh Kamble May 28, 2023 AT 01:46

    lol. You think this helps? I’ve had 3 relapses. No one cares about your ‘light walks.’ Your ‘ginger tea’ didn’t stop my kidneys from failing. This is feel-good garbage. Real talk? You’re just lucky you’re not dead yet.

  • Jenni Waugh
    Jenni Waugh May 28, 2023 AT 19:49

    OMG. I’m crying. This is the most beautiful, honest, *human* thing I’ve read all year. You didn’t just list side effects-you gave us back our dignity. The skin and hair part? YES. I wore scarves like crowns. You’re not just surviving-you’re THRIVING. I’m sharing this with my whole support group. 💪❤️

  • Norman Rexford
    Norman Rexford May 29, 2023 AT 06:42

    Man, I’m from Texas and I’ve seen this too. You don’t need a PhD to know chemo wrecks you. But I’ll say this-America’s healthcare system is a joke. If you’re poor, you can’t afford the meds they recommend here. This article? It’s nice. But it’s not real life for 70% of us.

  • Wayne Keller
    Wayne Keller May 30, 2023 AT 15:32

    Just wanted to add: hydration is everything. I didn’t realize how much dehydration made my fatigue worse until I started tracking my water intake. 2L minimum. And if you’re on dexamethasone? Salt cravings are real. Don’t fight it. Just don’t go full pizza.

  • Shana Labed
    Shana Labed June 1, 2023 AT 05:32

    THESE ARE THE TIPS I NEEDED. I WAS LITERALLY CRYING IN THE CHemo ROOM READING THIS. THE GINGER TEA THING? I DRANK IT FOR A WEEK AND MY NAUSEA DROPPED 80%. I’M NOT A ‘PATIENT’-I’M A WARRIOR. AND THIS ARTICLE? IT’S MY TROPHY. 🏆💖 #MyelomaWarrior #NoMoreSilence

  • California Daughter
    California Daughter June 3, 2023 AT 00:55

    Wait-so you’re saying… ginger tea… helps? With nausea? Like… actual, clinical nausea? From chemo? That’s… wow. I didn’t know that. I thought it was just a myth. Like… maybe it’s placebo? Or… maybe it’s not? I’m confused now. I mean, I’ve tried everything. Even chamomile. Nothing worked. But ginger? Hmm. Maybe. I guess? I don’t know.

  • Vishwajeet Gade
    Vishwajeet Gade June 4, 2023 AT 21:26

    USA thinks it’s the only country with cancer. In India we just take painkillers and keep working. No yoga. No scarves. No ‘emotional support.’ You think your fatigue is bad? Try working 12 hours a day with a broken spine and no insurance. This is privilege writing.

  • Casey Crowell
    Casey Crowell June 5, 2023 AT 08:42

    Just wanted to say this post made me feel less alone. 🤍 I’ve been on carfilzomib for 18 months. The bone pain? Yeah. But I started walking my dog every morning-even just 10 minutes-and it’s the only thing that makes me feel like me again. You’re not just surviving. You’re still here. And that’s everything.

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